Diagnosis of Exclusion = Too Much Waiting

Darah's diagnosis is possibly Juvenile Arthritis (AKA: JIA or JRA); however, JIA doesn't have a conclusive test.  Rather, it is known as a diagnosis of exclusion, in which other possibilities must be ruled out first.  Her other hand now has a similar mass on it and she is complaining of pain in her ankle.  The bigger mass is about the size of a ping pong ball cut in half and the new one has grown to be about the size of a nickel.  This has been a very scary and frustrating few weeks while we sort everything out and navigate between the many specialists we have seen or are waiting to see.  She has started anti-inflammatory medication and we are currently waiting to hear back from either ortho or rheumatology who are supposed to be consulting today since things are not remaining stable.  I am sure everyone in both offices has my phone number memorized from the number of times it's shown up on their caller id's, but my version of waiting usually involves trying to find ways to speed things up...especially when my sweet girl has undiagnosed, mystery masses popping up on her body and is complaining of pain.  Please pray we get answers quickly and begin an effective treatment soon.  Please also pray that whatever this is, JIA or not, that her little body heals.  

In the mean time, we are hitting the pool, spending time with friends and family, and doing all things SUMMER!